Lighting Up For "Children Of The Stars": 20 Years Of Struggle For An Autistic Father.

Autistic (autistic) children are like stars in the sky, one person, one world, lonely twinkling light, they are known as "children of the stars".

Their distance from the world is similar to that of distant stars. When they are focused by the public and the public, they may only be on the "World Autism day".

However, as a "star child" parent, the talented person who should have been a leader in the economic field has been paying attention to autism for nearly 20 years. He also fought for 20 years.

He was 22 years old, because he did not have the right institution to miss the best time to recover. He was dissatisfied with the current situation of the knowledge and ideas of autism rehabilitation in China for more than a decade. He was also dissatisfied with the situation that the institutions were in a mixed position. He was even more dissatisfied with the fact that the self rehabilitation teacher was extremely deficient.

It has been reported that there are nearly 14 million autistic children and 3 million children in China. They have no drugs to treat and can only intervene on their whole life. They live on average for only one year after their parents leave. What should they do when they grow up?

From Zhong, he wants to light a lamp to the outside world for the children of the stars.

"The child of the stars"

In 1998, he was born in Hongkong, Zhong An's son, and grew up like other children with his family's blessings. But compared with his peers, Ann developed slowly, until he was two years old, he could not speak. After being disturbed by Zhong Jue, he led ANN to go to the hospital for various examinations, and finally Ann was diagnosed with autism.

Autism, also known as autism, is a developmental disorder caused by nervous system disorders. Its symptoms include abnormal social skills, communication skills, interests and behavior patterns. Autism is a widespread developmental disorder characterized by severe, widespread social interactions and impaired communication skills, as well as stereotyped behaviors, interests and activities.

In medicine, autism can not be cured, and there is no targeted drug use, but early detection, early behavioral intervention and education can significantly improve the poor prognosis.

For this reason, Zhong Tong found the rehabilitation institution in Hongkong, but was told by the agency to queue for 22-24 months. After two years, Ann was going to be 5 years old. From then on, he felt that the queuing time was too long. He was afraid that it would be delayed because 3 to 5 years old was the best rehabilitation period for an autistic child.

At the same time, if Anan stayed in Hongkong, he would take Cantonese as the first language. On the whole, he gave up his career in Hongkong and went back to the mainland to investigate the rehabilitation institutions for special children.

"I never thought about giving up ANN, never having a second child." In May 7th, he was interviewed by an economic reporter in twenty-first Century. He said he could not bear to see Anan wronged.

He returned to Shandong from Anan and entered the rehabilitation center of Qingdao children's hospital. Thinking of Shanghai, Beijing, Shenzhen and Guangzhou may be better, but the reality is disappointing by Zhong.

"Many rehabilitation centers have poor facilities and facilities. For example, some rehabilitative institutions in early Beijing were in some cottages in some villages. The level of rehabilitation institutions for special children in the mainland is uneven, and education concepts and supporting facilities are lagging behind Hongkong for at least ten years. From Zhong Xiang twenty-first Century economic report reporter said.

Due to "unwilling to be reconciled", he spent more than a year in Chung, and studied various autism rehabilitation training courses in institutions such as Hongkong concord society, Yao Neng Association, University of Hong Kong, Hong Kong University Science & Technology and other institutions. "The gap between us and the international community is too great."

In fact, because of this gap, Anan's "best period" has also been delayed. In the interview, the reporter can feel the pain from Zhong as his father. "The whole thing was delayed," he said. The 22 year old Ann was unable to go to school normally. His mood was relatively stable and his basic life was all right, but the language had lost its golden recovery period.

"I often see Anan. He needs someone to take care of it." A staff member of an education institution for autism told the twenty-first Century business reporter. Ann is tall and big now, but very cute, not mature at that age, like a big boy. "The mouth will make some noises, like hum when listening to music. When excited, they will dance and dance, laugh when they are happy; when they are anxious, they can not express their language clearly and need guidance."

Light a lamp.

Zhong discovered that not only his father was in pain. As early as he was studying in Hongkong and other places, he had encountered many children like Ann. At that time, Zhong thought that if he went on like this, many children in the country could not have a good rehabilitation intervention environment, so he was determined to set up an autism rehabilitation education center.

In order to solve the urgent need of funds, and with the advantage of Hongkong's "charitable capital", in 2005, Hongkong founded the Hongkong Anan international autism education foundation. Then, in 2006, he returned home from Chung and founded the Ji'nan Anan special child rehabilitation center in Ji'nan. "We belong to a private non-profit organization. We applied for approval at the registration office of the Civil Affairs Bureau and the non-profit organization." It is introduced by Zhong.

As a rehabilitation education institution, it did not bring economic rewards to Zhong. Chung Chung said many of his classmates are now famous economic commentators, professors, etc.

In fact, since he grew up in a good family environment, his mother, Kong Lingren, is a descendant of the 76 generation of Kong Zi, who is not only a famous professor of economics history of Shandong University, but also served as the Standing Committee of the CPPCC National Committee, vice chairman of the all China Women's Federation and vice chairman of the Shandong provincial CPPCC. Zhong is the second child in his family. His name is "Zhong" from his mother. It is the expression of Confucius's great disciple Zi Lu (Zhong You).

Graduated from junior middle school, graduated from the Economic Research Institute of Nankai University, and became the first elites with professional background in economics at the beginning of reform and opening up. In the 90s of last century, Zhong Ding lived in Hongkong and managed to import and export trade. But for the sake of ANN and autistic children, he has gone farther and farther from the original orbit.

But he did not regret it.

Up to now, the Hongkong Anan international autism education foundation has established more than 20 rehabilitation institutions in Ji'nan, Guangzhou, Shanghai, Qingdao, Fuzhou, Suzhou, Dongguan and other cities, providing rehabilitation training for nearly 10000 children throughout the country.

After early diagnosis and rehabilitation treatment, autistic patients can take care of themselves. After education and training, they can also have a certain ability to work. If they do not undergo rehabilitation therapy and education, their condition will continue to develop and they may develop into schizophrenia.

"Autism has two core obstacles, one of which is social interaction and communication barriers. Asperger's disease and some high functioning autism in the autism spectrum disorders are able to enter primary and secondary schools through early rehabilitation education, but they need many special education concepts and methods for their education and communication. According to Zhong, more than 80% of the children in an autism rehabilitation education institution can enter kindergartens, and 30% of them can enter primary schools.

Zhong says that many autistic children have no problem with intelligence, but because of lack of executive function, they behave strangely. If we do not know how to communicate with them, we can not establish their confidence in school, nor can they learn real knowledge, or even cause confusion in classroom instruction.

What impressed Zhong is a child who is now in grade five in primary school. The child was almost four or five years old and was rehabilitative intervened by Zhong Yuan institution. Later, he went to primary school, and his academic records were basically in the top 3. However, the social rules were totally unfamiliar, he was unhappy in class or wanted to go to the bathroom, and he did not raise his hand to tell the teacher that he stood up and left.

"He told his classmates only what he liked, even though his classmates didn't like to listen. But he kept talking about himself. He was taller than the teacher, and he said" I love you "with the teacher. He belongs to a typical high functioning child. His intelligence quotient is no problem, but his social skills are too bad. One example is Zhong Jin.

"From last year to now, this child has come to us for 2-3 acts of intervention every week. At present, social skills can barely catch up, and learning is no problem, basically in the top 5." Let Zhong heart pain, many children do not insist on rehabilitation intervention, for this need lifelong intervention of the disease will have a huge impact.

20 years of struggle

Although the rehabilitation institution established by the international autism education foundation has helped tens of thousands of autistic children, Zhong is not satisfied because the number of children with autism is still rising, and there are still a large number of children who fail to receive rehabilitation intervention.

New York time March 26, 2020, the CDC released the prevalence rate of autism spectrum disorders, the latest statistics is 1:54, compared with the data released in 2018, 1:59 increased by 10%.

According to statistics in 2017, Hongkong has become the highest incidence of autism in the world, reaching 1/27. "In 1%, 1 billion 400 million of China's population, China's autism has more than 14 million." From Zhong said.

Looking at these data, parents, as parents of autism, clearly understand what is behind these figures and know more about what they want to do.

In fact, in the past 20 years, from the beginning of finding rehabilitation institutions for ANN, Zhong has embarked on a road of "struggle". He has seen the idea of rehabilitation education in the past ten years in China, the rehabilitation education market mixed with fish and grass, and the lack of professional education personnel, all of which want to change.

"Many institutions now cater for parents, ignoring the fact that autistic children are incurable and need lifelong intervention, trying to make autistic children live in accordance with the trajectory they set according to the so-called" training ". Zhong said that this kind of rehabilitation education can see some effect in the short term, but it will eventually cause more emotional problems for children.

This is actually a matter of Anan's experience. In some rehabilitative educational institutions, he used "card cognition" and "round teaching" to teach Ann. Within two or three months, Ann seemed to know some desktop cards, but finally Ann's mood was completely collapsed. As long as he began to put the table, he began to fight in various ways.

The "training" accepted by Zhong An An is the content of Applied Behavior Analysis (ABA). "It is only a branch of psychology. How can it relate to special education so closely?" Last year, I received a very senior person in charge of the American Association for behavioral analysis. He said that the current situation in China surprised them so much that they would ruin their entire profession.

In addition, Chung said that the market is still under the banner of evidence-based medicine training, but the fact is that autism evidence based practice and medical evidence is two different things.

From Zhong Xiang twenty-first Century economic report, the reporter said that according to the orientation of the international ICF social integrated mode, autism is just a kind of functional deficiency. Just like myopia several hundred years ago, although medicine can not solve it at present, changing social inclusiveness and complemented by their missing functions will enable them to participate in work and social activities.

In concept, autism rehabilitation education remained in the last decade, and the profit seeking nature of some institutions has made the market mixed up, and some of the capital has gone into disorder. Some organizations have used some foreign theories to build up tiger skins for economic purposes. In Beijing, there has been a 120 thousand month autism agency, which not only ignored the rehabilitation effect, but also delayed the valuable rehabilitation opportunity.

"Capital sees 14 million of the autistic patients, the cost of a patient needs to be conservatively calculated according to 4-5 000, cut 10% of the cake, the figures also have a huge return." From Chung to capital, he calculated an account.

Then, the reality is that all kinds of teaching and courseware are flying all over the world, and directly affect the intervention of children. Because their rehabilitation concept is backward, and professional rehabilitation teachers are also seriously lacking.

The 2018 national statistical bulletin on educational development shows that there are 58 thousand and 700 full-time teachers in special education schools nationwide, and 665 thousand and 900 people in various forms of special education are enrolled throughout the country. According to the comparison between teachers and students in special education, the number of teachers in the special education sector is about 107 thousand and 800. 1:4

"In the face of the shortage of teachers, many special education institutions can only recruit non professionals. Especially in some private rehabilitation institutions, special education graduates account for less than 3 of the first-line teachers. In addition to special education graduates, there are graduates from special education, including preschool education, social work, law, Chinese, psychology and so on. Although these employees have a certain degree of education, their knowledge structure is far from the special education industry, which will undoubtedly have a certain impact on teaching. From Zhong said.

Chung said that their autism rehabilitation education institutions have 60% special education professionals, as well as pre school education, psychology, clinical medicine, social work and other professional graduates, but the entire autism rehabilitation education institutions may only be 10% of them have received special education professional learning and training of talents, many of which are all kinds of training certificates in the community.

"But a real autistic rehabilitation teacher needs to know a lot of knowledge and undergo years of training. We also have training autistic rehabilitation teachers, spending hundreds of thousands of years in 9 years to complete 135 credits in Hongkong. According to Zhong, the key to the development of autism rehabilitation education in China is the problem of rehabilitation teachers.

In addition, due to the general lack of awareness of autism in the community, the phenomenon of "arbitrary drug use and arbitrary charging" has been repeatedly banned in the rehabilitation treatment of autism. In this regard, as a member of the Shandong provincial CPPCC Committee, he constantly appealed to the "two sessions" in Shandong: "it is necessary to establish a long-term rescue mechanism, focusing on solving problems such as school-age vocational skills training, employment and social security, and constantly improving laws and regulations from the aspects of social welfare and security, so as to provide solid social security for patients and their families."

From the point of view of Zhong, autistic patients need to understand, tolerate and support family, government and society from cradle to paradise.

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